The days are kind of blurring together, and I didn’t realize that it had been so long since I posted an update. Kyle has been eating very well, so the doctors have been changing his feeding schedule and the amount he is fed throughout the week. He started on 10cc of milk or formula every three hours, which was elevated to 20cc, then 50cc. Now he is “ad lib, on demand,” meaning he gets fed as much as he wants, as often as he wants it. When I called to check on him this morning, the nurse said that he had been eating 100cc at a shot through the night, but backed down to about 60cc (2 oz.) this morning.
The nutrient and lipid IVs were turned off a couple days ago, though they haven’t removed the IV tube just yet. After Kyle kicked the IV out a couple of times, the nurses put the tube in his left hand, where it has stayed pretty well. I’m hoping they’ll actually remove it today, though.
The nurse I talked to this morning said Kyle would most likely be discharged tomorrow, but it has been very frustrating to have one person tell us “Thursday or Friday” at 2PM, then another say “Friday or Saturday” at 6PM. The difference between Thursday and Saturday may not seem like much to them, but it’s huge to us.
That’s about it. Hopefully, the next time I post it’ll be to say that Kyle is home with his mom and dad (and Rosie & Gil).
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